Someone suggested in the previous comments that perhaps I was taking a hiatus at the beach. I wish it were so. As I'm typing, my raincoat is nearby, as we're still waiting for the sun to make an appearance this 'summer' in our neck of the woods. So, no, sadly I have not been spending my time at the beach. I will try to recap my last 2 weeks for you. Let's start with the fun parts:
I'm having some severe night sweats, hot flashes and (obviously) insomnia (who could sleep through the night sweats and hot flashes?) that are leaving me tired, soaked, grumpy in the morning, and just generally pissy that I have to go through them. This is because of course chemo has shut down my ovaries and now I am experiencing the joys of menopause. There are many more side effects to menopause, and I'm experiencing those too, and I am not liking them. For those of you that have gone through it, you know what I'm talking about, for those of you who haven't - I don't want to scare you. 'Nuff said.
I've had a bladder infection 3 times this month. Yup, THREE times. Each time I finish one round of antibiotics, it comes back, and I go on another antibiotic. I am currently half way through my third antibiotic, and the lab called me (they finally cultured my sample) and they say that that can't find any micro-organisms in the sample. Which leaves me puzzled, but I wonder if that's because I've been on constant antibiotics and they can't see it because of it? Or, perhaps it's not a bladder infection at all and I need a referral to a urologist now? Hmmm... either way, doctor apt is at 1:30pm today.
I found a lump on my chest wall - it's been there a few weeks, but it's getting bigger. I went to my doctor, my surgeon and my oncologist. At first nobody was concerned, they said it could be 'fatty tissue' so we should watch it. Now it's grown, it's getting more painful and I'm half way crazy with worry. So now we're doing a CT scan on it - it looks like they're trying to get one for July 11, which happens to be my birthday. It's ok, I'm having another procedure done at the hospital that day so I guess it's as good time as any. I just want to know what it is. Let the scanxiety begin.
Yesterday was the last of my chemo sessions. It was a bit of a crap shoot, as I went in there high as a kite (i even borrowed a graduation cap from a local highschool to mark my 'graduation' from chemo) and left there quite in a different mood. Turns out my port wasn't working right (Brad had put his head on my shoulder for an impromptu snuggle a few weeks ago, and by accident somehow must have moved the port or the line from it. I felt pain immediately and of course he lifted his head right away but the 'damage' had been done. I was in pain for a couple of weeks after that, the line in the port felt kinked and it hurt when I lifted up my left arm and I could no longer sleep on my left side due to the pain. Of course the doctors said it'd be fine) Anyway, it was fine after a while, at least the pain went away... but yesterday when they tried to access the port and stick the chemo in it, guess what? It wasn't working. Ugh. So, for my very last chemo they ended up having to stick it in my veins (which I've been trying to avoid, which is why I got the port in the first place, and all the nuisance that came with that surgery). Anyway, it was ok in the end, but it did sting going in and I didn't like it. At least, we're done with chemo.
Yesterday at my last chemo session.
On July 29th I'll have a small 'procedure' to remove this darn port out of my body and I can't wait. Good riddance. I have agreed to be awake during it, and I hope things will be less complicated than when they put it in.
Radiation begins beginning of August. Turns out 3 weeks ago, a major international study came out and based on this study, women with my stage of cancer not only are recommended to get radiation, but it should now include radiating the lymphnodes by the collar bone too (Earlier I was perceived as 'aggressive' for pursuing radiation, now it's recommended and more of it. So, of course this will discolor my skin like crazy (and now above the collar bone too, which I will not be able to hide in clothing) One more point for cancer ruining what is left of my body. Ugh. But I'm glad the study came out because apparently it is changing the standard of care in radiology and I'm lucky to be getting in at the right time to take advantage of it. 3 weeks ago it would not have been the case. And that is why they do studies I guess.
It's the end of the school year. My last week has been spent at school, as my son received an 'Academic Honors Award' one day, my daughter was in the 'school talent show' the next day, doing a dance, the day after that was the school play, in which my son had one of the lead roles, and yesterday, was the musical performance in which my son played the recorder. What can I say, I have multi talented kids. Needless to say, I spent my days at the school clapping and cheering and taking pictures. I really appreciated the chance to be there, as normally, in June I would never be able to take time off work (property tax season and all) so I'd have missed it all, like in previous years. Yeay for silver linings.
He is in the front row, last one on the right.
During the school play... It was "the world of OG"
Again, last one on the right. He did a great job and may have found his calling.
I went to the Rihanna concert on Saturday, with my BFF Christine and her daughter. We had the good fortune of staying in a company box, (Christine's company owns a box in this building, and often they let their employees use it) Anyway, I'm not much of a Rihanna fan normally, but it was fun and I enjoyed it. A bit raunchy, and it was funny hearing her 12 year old daughter say 'mom, this is inappropriate' several times.
All dressed up for the Rihanna concert.
Also, through Christine we got the box use again, for July 10 - for ... New Kids On the Block!! Now this concert, I am sooo excited about. I remember them in concert when I was 16. I loved loved loved Johnathan Knight... Hehe. I am taking my daughter this time, and Brad's oldest daughter. It's the day before my birthday, and I plan to have a great time and forget all about the scans the next day. Looking forward to it. The kids have no idea who they are so I have been going on YouTube and showing them videos and songs from the 'olden days' lol. They are just exited to be going.
So, folks, that's what I've been doing the last 2 weeks. Sorry I didn't post. I am now preparing for the chemo yuckies to start today - nausea, bone pain and joint pain is on the horizon for me, but I usually turn the corner by day 10, and knowing this is the last cycle of this may make it easier to bear this time.